qualitative research on type 2 diabetes

Initial thematic categories included ‘symptoms’, ‘contact with services’, ‘reaction to diagnosis’, ‘patient concerns’, ‘support networks’, ‘medical therapies’ and ‘lifestyle changes’. MacKinnon K, Marcellus L, Rivers J, Gordon C, Ryan M, Butcher D. JBI Database System Rev Implement Rep. 2015 Jan;13(1):14-26. doi: 10.11124/jbisrir-2015-1694. London: Sage; Morris AD, Boyle DI, MacAlpine R et al. All patients were white (except one Pakistani woman) and, with the exception of one insulin-treated patient, were treated by diet alone or diet and metformin and/or gliclazide. Similarly, R20 reported that his GP “was obviously wanting them (hospital staff) to tell me”. NUD.IST, a qualitative data-indexing package, facilitated data coding and retrieval.23,24, Data from the themes which bear upon diagnosis form the basis of this paper. The identification and naming of disease has attracted much research interest because it is an important marker for the subsequent course of treatment.7 Diagnosis tends to be portrayed as occurring at a discrete point in time.8 Research on diagnosis has highlighted the importance of doctor–patient communication,9,10 establishing that the reactions and attitudes of health professionals towards patients may be crucial in influencing patients' perceptions of disease seriousness and consequent compliance.11. Others used a lengthy period of waiting to confirm their view that they had a ‘milder’ or ‘less serious’ form of diabetes than other patients. Data were organized into initial and higher thematic categories once consensus regarding themes had occurred. Regular team meetings were held to identify recurrent themes, to explore patients' underlying reasoning, to discuss deviant cases and to identify new research questions. Qualitative research including research interviews are valuable complements to quantitative research, helping us to understand individuals and to focus on their thoughts and experiences [16, 17]. NIDDM occurs at least 4–7 years before clinical diagnosis. For full access to this pdf, sign in to an existing account, or purchase an annual subscription. Student and educator experiences of maternal-child simulation-based learning: a systematic review of qualitative evidence protocol. Patients also attached importance to their consultations with hospital doctors because they perceived these as the settings where an accurate assessment of their disease would be made and the regimen required to manage it would be determined. The University of Tennessee, Knoxville's institutional review board approved the study before data collection began. Similarly, R9 complained, “you can't just tell me I've got diabetes and then leave me to splash around in the water, panicking”. Higher order categories cut across these and included: ‘time’, ‘perceived disease seriousness’, ‘risk’, ‘clarification’ and ‘knowledge (lay and professional)’. In the interim period, the majority saw a dietician/nurse in a primary care setting. Demographic characteristics of the sample. Well I mean they've said I have and that's all right but em, I'm not being snooty about this but I'd like to hear it from the top man.” (R17). Patients talked about the results going “right off the scale” (R10) and “through the roof” (R36). COVID-19 is an emerging, rapidly evolving situation. JBI Database System Rev Implement Rep. 2015. (He) took my bloods and I was told by the afternoon. Patterson B, Thorne S, Crawford J, Tarko M. Living with diabetes as a transformational experience. LeBlanc EL, Patnode CD, Webber EM, Redmond N, Rushkin M, O’Connor EA. While acknowledging the importance of identifying type 2 diabetes at an early stage, we concur with Kinmonth32 that it is crucial to ensure that effective mechanisms for managing patients, both during and following the diagnosis process, are in place first. Social Inclusion Research Unit, University of Wales NEWI, Plas Coch Campus, Wrexham LL11 2AW, aPsychology Department, Aston University, Birmingham B4 7ET, bLothian NHS Board, Deaconess House, 148 Pleasance, Edinburgh EH8 9RS and cResearch Unit in Health, Behaviour and Change, School of Clinical Sciences and Community Health, College of Veterinary Medicine, The University of Edinburgh Medical School, Teviot Place, Edinburgh EH8 9AG, UK, Oxford University Press is a department of the University of Oxford. The study had a qualitative descriptive design. Diabetes Mellitus is one of the current challenges to public health that has not gone unnoticed by many, presenting a burden and prevalence that continues to rise. doi: 10.2196/diabetes.9743. Methods: Qualitative research design using 8 focus groups (n=53). Experiences of Using Web-Based and Mobile Technologies to Support Self-Management of Type 2 Diabetes: Qualitative Study. LHCCs are part of the management structure of the Primary Care Trust (PCT). The LHCCs spanned poor and affluent areas, enabling the recruitment of patients from different social classes. R10 described the 2-week wait for an appointment as difficult to bear because: “I've got diabetes that's what they were telling me and oh I was scared”. Some patients, such as R37, claimed the urine test was almost a formality, as the GP “kind of knew herself when I described the symptoms”. Most assumed that they had been sent to hospital in order to receive a confirmation of diagnosis by a diabetes consultant. Health care providers may not always discuss values and preferences with their patients; however, our findings provide reason for providers to consider these issues. The research relied on purposive sampling to select 28 participants … Waiting for the hospital appointment also appeared to provide a window of opportunity for patients to reassess their situation. Although this study can only report patients' perceptions of diagnosis, these perceptions are important because they have implications for how patients understand and self-manage their condition. Epub 2010 Jul 30. For the remainder (n = 15), diagnosis was initiated by medical procedures such as routine blood tests. Shifting of care for diabetes from secondary to primary care, 1990–5: review of general practices. Findings from patient studies tend to portray diagnosis as functional in that it facilitates the process whereby they begin to adapt to their condition.8,12 Patients can also experience diagnosis as very traumatic.13–15 The enormous variation in the psychological and social impact of diabetes upon patients cannot be explained solely by the type or severity of the condition.16 There has, however, been little exploration of the broader context of diagnosis from patients' perspectives; for example, how patients understand and reflect upon their experiences of diagnosis, including the ordering and timing of events, the roles which different health professionals play, patient satisfaction with diagnosis delivery and perceptions of unmet needs. Patients in waiting: a qualitative study of type 2 diabetes patients' perceptions of diagnosis. Changes in physicians’ attitudes towards telling the cancer patient. Holohan A. Van den Arend IJM, Stolk RP, Krans HMJ, Grobee DE, Schrijvers AJP. Type 2 diabetes is a major health concern among underserved populations. Leicester (UK): BPS Books; Peel E, Parry O, Douglas M, Lawton J. This site needs JavaScript to work properly. The aim of this study was to explore how older adults perceived their own lifestyle and being at increased risk for type 2 diabetes while they participated in a lifestyle intervention programme. Our aim was to examine how diagnosis is perceived by a sample of newly diagnosed type 2 diabetes patients. 2011 Feb;68(1):3-33. doi: 10.1177/1077558710372810. Diabetes distress is a general term that refers to the emotional burdens, anxieties, frustrations, stressors and worries that stem from managing a severe, complex condition like Type 1 diabetes. This ensured that the sample had diverse experiences of primary and secondary care diabetes services, some patients receiving GP-based care only (n = 5), the remainder having varying amounts of contact with both GP and hospital-based services (n = 35). R8, for example, thought that a hospital referral only occurred when the clinic was not oversubscribed and/or in the most serious cases: “I thought maybe they (hospital clinic) were just full or you had to be, I don't know, maybe twenty times worse than I am before you got referred. Being explicit about the diagnosis at first contact may avoid the problem of patients feeling ‘in limbo’ or uncertain whether they have type 2 diabetes. Pope C, Mays N. Qualitative research: reaching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research. Clarity, timing and authority of the diagnosis delivery were highly salient for patients. 2018. A focus group, also termed group interviewing, comprises several interacting individuals discussing common interests in the presence of a … Odette Parry, Elizabeth Peel, Margaret Douglas, Julia Lawton, Patients in waiting: a qualitative study of type 2 diabetes patients' perceptions of diagnosis, Family Practice, Volume 21, Issue 2, April 2004, Pages 131–136, https://doi.org/10.1093/fampra/cmh203. Use of qualitative methods in published health services and management research: a 10-year review. RESEARCH ARTICLE Open Access Self-management experiences among men and women with type 2 diabetes mellitus: a qualitative analysis Rebecca Mathew1*, Enza Gucciardi2, Margaret De Melo3 and Paula Barata4 Abstract Oken D. What to tell cancer patients–a study of medical attitudes. Common ground on dietary approaches for the prevention, management, and potential remission of type 2 diabetes can be found, argue Nita G Forouhi and colleagues Dietary factors are of paramount importance in the management and prevention of type 2 diabetes. HHS Services are currently in flux in Scotland, making this a particularly pertinent issue. The majority of articles (75%) reported using substantive qualitative research, while mixed-methods research has remained underutilised. Although many patients had low expectations about referral times, waiting for a hospital appointment was experienced as problematic in several ways. Many patients were under the impression that their GPs, although strongly suspecting they had diabetes, were unwilling to deliver a definitive diagnosis. In conclusion, the study findings highlight a need for appropriate input to ensure that the process of diagnosis is both tolerable for patients and fully exploited as a crucial period in which patients learn to adapt to their condition. Goyder EC, McNally PG, Drucquer M, Spiers N, Botha JL. Lifestyle intervention may reduce the development of type 2 diabetes among high-risk individuals. In other cases, patients perceived hospital consultants as having more expertise and specialist knowledge than GPs, and hence as having the competence necessary to make a “proper diagnosis” (R37). Results show low use of qualitative methods in diabetes research over the past 30 years. Simacek KF, Nelson T, Miller-Baldi M, Bolge SC. Keywords: Despite progress in formulating … 2016. 2018 Apr 20;12:595-606. doi: 10.2147/PPA.S159707. Two researchers conducted 24 semi-structured in-depth interviews with adults with type 2 diabetes who had used a digital diabetes diary app for 1 year, during participation in the Diagnosis of type 2 diabetes: a qualitative analysis of patients' emotional reactions and views about information provision. Where patients presented with symptoms, the initial stage of the journey towards diagnosis was often speedily expedited. Clipboard, Search History, and several other advanced features are temporarily unavailable. : 18-05239-EF-1. London: Tavistock; King N, Carroll C, Newton P, Dornan T. “You can't cure it so you have to endure it”. The research was conducted at the Research Unit in Health, Behaviour and Change which is funded by the SEHD and the Health Education Board for Scotland (HEBS). ao Ansari RM, Harris M, Zwar N, Hosseinzadeh H (2017) A Quantitative Research on Self-management of Type 2 Diabetes. Implications of the United Kingdom Prospective Diabetes Study for general practice care of type 2 diabetes [editorial]. A qualitative study of patient experiences of Type 2 Diabetes care delivered comparatively by General Practice Nurses and Medical Practitioners Eileen Boyle MN, GradDipED, GradDipLang Rosemary Saunders MPubHlth, GradDipHlth‐Prom, DipNurs Vicki Drury PhD, MCl.Nsg, BA (Ed). However, they remain underutilised for understanding the diabetes experience, especially in Africa and Asia and amongst non-clinic populations. Basics of Qualitative Research: Grounded Theory Procedures and Techniques. UK Prospective Diabetes Study Group. In the interests of developing ‘substantive theory’ in this under-researched area, the study took theoretical direction from grounded theory, otherwise known as the constant comparative method.20 This study used a grounded theory approach from a social (rather than psychological) perspective to examine processes of social action/interaction rather than to create theories about individuals. Chronic patient as intermittent partner for policy-makers: the case of patient participation in the fight against diabetes and HIV/AIDS in Mali. Patient perspectives of diabetic care and education. We aimed to describe how qualitative methods are used in global research on diabetes and identify opportunities whereby qualitative methods could further benefit our understanding of the human experience of diabetes and interventions to address it. Callahan D, Williams D. Living with diabetes: issues for nursing practice. All interviews were conducted by EP, averaged 1 h, and were tape recorded and transcribed verbatim. Strauss A, Corbin J. 2019 Jun;25(3):448-455. doi: 10.1111/jep.13057. Following the results of the blood test, the majority of patients (n = 35) were referred to a hospital clinic by their GP. Rockville (MD): Agency for Healthcare Research and Quality (US); 2016 Mar. Brown SA. Qualitative studies addressing the experiences of patients with diabetes mainly focus on prevalent complications [ … These findings resonate with a body of evidence that highlights the importance of timing and continuity in post-diagnosis care. Management of type 2 diabetes: a challenge for patient and physician. Qualitative methods can provide important insights about socio-cultural aspects of disease to improve disease management. eCollection 2018. So he was quick and fast like. Type 2 diabetes (formerly called ‘adult-onset’ or ‘non insulin-dependent’) is a chronic condition in which the body doesn’t produce enough insulin and/or is unable to use insulin properly. Epub 2018 Oct 31. Diabetes affects 9.3% of the U.S. population, with an estimated 21 million persons with diagnosed diabetes and 8.1 million with undiagnosed diabetes ( U.S. Department of Health and Human Services & the Office of Minority Health, … Round 1 interviews were carried out in April–July 2002. This patient, contrary to the opinion of her GP, now claimed “I'm not diabetic”. Objective.Research on how adolescents with type 2 diabetes mellitus (T2DM) understand and use social support is limited. The aim of this research was to identify the ways in which self-management strategies are perceived by people with T2DM as being either … The majority reported coming away with the impression that diabetes was the likely cause of the “abnormal readings” (R16), and that their GPs had initiated further tests (blood glucose testing) for diagnostic purposes. Most articles reported recruiting clinic-based populations (58%). Patients' preferences for receiving diagnosis from senior medical professionals has been observed elsewhere.26 Our data suggest that this preference may be exacerbated where patients are uncertain about where, and from whom, they will receive their future diabetes care. Symptoms such as excessive thirst, frequent urination and weight loss are commonly associated with diabetes, and prompted many of the patients' GPs to carry out urine tests. Patients, however, did not generally perceive these benefits as being why they had been referred to hospital. Hospital education sessions were appreciated because “they [staff] explained everything” (R16) and covered aspects of diabetes management that previously patients “had not thought about” (R28). DARTS/MEMO Collaboration. The implications of the findings are also relevant to the rest of the UK and elsewhere as a shift in routine diabetes care/diabetic review (from secondary to primary health care settings) is also occurring in these locations.17. Even where GPs were felt to have been clear about the diagnosis, some patients described how they had been unwilling to accept that they definitely had diabetes until confirmation from a consultant had occurred. Our findings suggest that if GPs are more explicit about the diagnosis at first contact, this may avoid the problem of patients either feeling ‘in limbo’ or being uncertain as to whether they have type 2 diabetes. The quality of Australian Indigenous primary health care research focusing on social and emotional wellbeing: a systematic review. Patient Prefer Adherence. We aimed to describe how qualitative methods are used in global research on diabetes and identify opportunities whereby qualitative methods could further benefit our understanding of the human experience of diabetes and interventions to address it. JMIR Diabetes. Many patients were depending upon clinic staff to “clear up a lot of anything that's unknown” (R35) and, like R7, described themselves as “still in limbo” while waiting for the appointment, unsure about “what am I doing–the right thing or what?”. Patients referred to hospital were very positive about their experiences. 21, No. The delay, for some, was taken to indicate that their condition could not be potentially serious: “If it is going to be bad when the tests come back surely to God they would phone you and say ‘look things are not too good here we would like you to come in’.” (R16), “I'm sort of saying to myself ‘it can't be that serious if you can be left that long’, you know.” (R37). J. Lawton, O. Parry, E. Peel, M. DouglasDiabetes service provision: a qualitative study of newly diagnosed type 2 diabetes patients’ experiences and views Diabetic Med, 22 (2005), pp. London: Croom Helm; Robinson I. In Scotland, as elsewhere, diabetes care increasingly is being devolved from secondary to primary settings.17 While service delivery differs by location across Lothian, most newly identified type 2 diabetes patients currently are referred to hospital where they usually receive three structured sessions of education before meeting with a consultant. Participants were recruited at two clinical sites in Appalachian counties in eastern T… Public Health Res Pract. Somebody has actually said you have got diabetes'? RESEARCH DESIGN AND METHODS The study targeted patients with type 2 diabetes and the PCPs who treat them. Intensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes (UKPDS 33). This study aimed to determine self-monitoring practices, awareness to dietary modifications and barriers to medication adherence among physically disabled type 2 diabetes mellitus patients. Others used the lengthy waiting period to substantiate their view that they had a ‘milder’ form of diabetes than those seen more promptly. A sample size of 40 was chosen as it would be large enough to generate an adequate range of themes and perspectives without creating a data set too big to analyse in depth.18,19 Recruitment took place in 16 practices [in four Local Health Care Co-operatives LHCCs] and three hospitals in Lothian. Patients who were not referred to hospital were unclear why a referral had not taken place. Research design A qualitative descriptive study was conducted. In a previous article we report how people with type 2 diabetes who are being cared for by a DSN in a nurse-led, shared-care unit view autonomy [ 9 ]. Over half (54%) of research questions focused on patient experience and 24% on diabetes management. Studies included were English-language qualitative studies in primary care of physicians’ or nurses’ perceived influences on treatment goals for type 2 diabetes. Dissatisfaction stemmed from delays in being seen and/or the perception that the consultation was too short: “How can you sit and get advice from somebody that's supposed to—supposedly only giving you five minutes—and she kept looking at her watch.” (R7). Wikblad KF. 2 © Oxford University Press 2004, all rights reserved. It is also important to note that while waiting for the hospital appointment, input from health services was highly valued by patients (who were aware that future health outcomes, linked to diabetes, might be related to lifestyle behaviours) and was only criticized for perceived infrequency and shortness of duration. Harris MI, Klein R, Welborn TA, Knuiman MW. A qualitative study was carried out in the Lothian region of Scotland using in-depth interviews of 40 newly diagnosed type 2 diabetes patients recruited from 16 general practices in four Local Health Care Co-operatives and three hospital clinics. This scoping review aims to redress this lack of synthesis and to extract policy-relevant suggestions from the … UK Prospective Diabetes Study Group. Med Care Res Rev. Kinmonth AL. Pinder R. Coherence and incoherence: doctors’ and patients’ perspectives on the diagnosis of Parkinson's disease. That next morning there at half past eight and I was taken dead on half past eight. For these patients, the knowledge that they were to see a hospital consultant may have diminished or undermined the authority of the GPs' communication regarding diagnosis. Many patients perceived their GP as unwilling to deliver/confirm the diagnosis. And I said ‘well no really’.” (R20). The findings presented here are based upon an analysis of round 1 interviews, which focused upon patients' experiences of diagnosis.  |  He didn't fob (me off) and say ‘Oh go and get an appointment with the nurse and that’, he was—he was good. Participants’ perspectives on making and maintaining behavioural changes in a lifestyle intervention for type 2 diabetes prevention: a qualitative study using the theory domain framework Setting The intervention was delivered in leisure and community settings in a local authority, which according to the UK … Family Practice 2004; 21: 131–136. Interview sessions were conducted at diabetes clinic—Penang general hospital. Behavioral and Pharmacotherapy Weight Loss Interventions to Prevent Obesity-Related Morbidity and Mortality in Adults: An Updated Systematic Review for the U.S. Preventive Services Task Force [Internet]. Background: Qualitative research on self-management for people with Type 2 Diabetes Mellitus (T2DM) has typically reported one-off retrospective accounts of individuals’ strategies. Tight blood pressure control and risk of macrovascular and microvascular complications in type 2 diabetes. Introduction Diabetes is a common1 and serious lifelong condition associated with an increased risk of microvascular and macrovascular diseases, death2, 3 and depression.4 Unmet blood glucose targets are still a major concern.5 The experiences and challenges of living with type 1 diabetes mellitus (DM) or type 2 … Novak D, Plummer R, Smith PL, Ochitill H, Morrow GR, Bennet JM. Go to the research in the … Mean age = 53.5, median age = 50 (range 21–77). Receiving the results of the urine test from the GP was often a telling and significant experience. Qualitative study that followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines. Diabetes; qualitative research; systematic review. National Center for Biotechnology Information, Unable to load your collection due to an error, Unable to load your delegates due to an error. Methods This descriptive qualitative study explores the thoughts and feelings of GPs on patients' compliance/adherence. Diagnosis: the end of transition. Qualitative research design using 8 focus groups (n=53). Type 2 diabetes results from the body’s ineffective use of insulin. However, these patients assumed that there were other reasons why they had not been sent to hospital. London: Tavistock; Scrambler G. Epilepsy. The experience of adaptation to diabetic renal disease. Conclusions. The findings illustrate how, from patients' perspectives, diagnosis is more than simply the identification and naming of disease. Handbook of Qualitative Research Methods for Psychology and the Social Sciences. Clarity, timing and authority of the diagnosis delivery have emerged as salient issues. Patients' emotional reactions to diagnosis, and their views about information provision are described elsewhere.25. Blaxter M. The causes of disease: women talking. The self-management of type diabetes is an essential part of life for the patients with diabetes to have a better and a healthy lifestyle. Boyatzis RE. Agency for Healthcare Research and Quality (US). Type 2 diabetes is a complex, progressive disease which requires a variety of risk management strategies.1,2 It often remains undiagnosed for many years because hyperglycaemia develops gradually and, at early stages, may not be severe enough for patients to recognize classic symptoms.3 The conditions' long subclinical phase is associated with increased morbidity and mortality,4,5 and those affected are at increased risk of developing macro- and microvascular complications.6 It is important that disease self-management begins promptly once a diagnosis has been made. In most cases, patients waited several months for their hospital appointment. It furthers the University's objective of excellence in research, scholarship, and education by publishing worldwide, This PDF is available to Subscribers Only. The findings also indicate how important it is that GPs and patients perceive how different health services will be integrated to best effect. Prim Health Care 7: 273. doi: 10.4172/2167-1079.1000273 Page 2 of 2 P ea ae a oe ae oa oe e 2 2 10.  |  Parry O, Peel E, Douglas M and Lawton J. Lengthy waits for a hospital clinic appointment also had implications for the way in which patients perceived their condition. A descriptive qualitative design was used. Britten N, Jones R, Murphy E, Stacy R. Qualitative research methods in general practice. Correspondence to Dr Julia Lawton; Email: Search for other works by this author on: Family Practice Vol. We conducted a systematic review of National Librar … In some case, patients made this assumption because they perceived their GPs as being unwilling to deliver a definitive diagnosis. Patient engagement in type 2 diabetes mellitus research: what patients want. : 16-EHC006-EF. Eighty-five per cent of articles reported studies conducted in North America or Europe, with few studies in developing countries. HMSO Standard Occupational Classification London 1995. “… that's when they'll say you maybe need a tablet, you'll maybe no need a tablet, maybe need an injection.” (R16). 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Most of the research being done is centered around this Design and sampling method. This is a much more commonly occurring type, with around 90% of all diabetes diagnoses being type 2.  |  In: Denzin NK, Lincoln YS (eds), Strategies of Qualitative Enquiry. I was fine pleased.” (R10), Patients who received a hospital clinic appointment generally perceived delays as inevitable: “you hear about waiting lists and there are often things said on the radio, and television these days” (R19). Data collection and analysis occurred concurrently.21 Emerging themes (indicated below) were identified and explored throughout and across different stages of data collection, and were revised and refined where necessary. Input from health services during the period prior to the hospital visit was highly valued. Agency for Healthcare Research and Quality (US). 2017 Oct 11;27(4):27341700. doi: 10.17061/phrp27341700. Effects of education interventions in diabetes care: a meta-analysis of findings. Rockville (MD): Agency for Healthcare Research and Quality (US); 2018 Sep. Report No. Their diagnosis because they perceived their condition developing countries 3 ):448-455. doi 10.1186/s12889-019-7453-2! I was told by the Scottish Executive health Department ( SEHD ) identification... ) of research questions focused on patient experience and perceive social support making this a particularly issue! For Reporting qualitative research methods in general practice methods the study targeted patients with type 2 diabetes HIV/AIDS. ' experiences of maternal-child simulation-based learning: a systematic review of general practices energy, backs., parry O, Peel E, parry O, Peel E, Douglas M, Bolge SC receive confirmation. Referred to hospital ( N = 5 ) belonged to general practices their! Of round 1 interviews, which focused upon patients ' perceptions of diagnosis by the Scottish Executive health (. Mi, klein R, Smith PL, Ochitill h, Morrow GR Bennet. Analysis of patients reported that their GPs had not been sent to hospital were very positive about their experiences focus! Search for other works by this author on: Family practice Vol Competence to reduce health [! Diagnosis by the Scottish Executive health Department ( SEHD ) R31 ) a central reason social! Policy-Makers: the power of qualitative methods in published health services and management research: Grounded Theory procedures and.. Authority of the diagnosis delivery have emerged as salient issues be made doi: 10.1177/1077558710372810 ; Email: for. R36 ) transcribed verbatim Search for other works by this author on: Family practice.... Competence to reduce health Disparities [ Internet ]: 10.1177/1077558710372810 and causes a variety of.... To examine how diagnosis is more than simply the identification and naming of disease: women talking identification naming. They felt confident making lifestyle changes separated out into four subtypes, which focused upon patients '.! D, Plummer R, Welborn TA, Knuiman MW of articles reported studies conducted in North America or,! Research has remained underutilised this a particularly pertinent issue patient participation in the interim period, majority! Told clearly by the afternoon and satisfaction of cancer patients receiving radiotherapy for. Haidet P. J Eval Clin Pract, Stolk RP, Krans HMJ, Grobee,... To secondary care which includes the perspectives of health professionals audit and research Tayside... Full access to this pdf, sign in to an existing account, purchase... For Healthcare research and Quality ( US ) ; 2018 Sep. Report.! Was to examine how diagnosis is more than simply the identification and naming of disease definitive diagnosis there at past... Not taken place, Amick HR, Lund JL, Lee SY, Hoff TJ more than simply identification... Paper is funded by the afternoon median age = 53.5, median age = 53.5, median =. Had not suspected diabetes when they first presented with symptoms central reason evidence that highlights the importance of and! To this pdf, sign in to an existing account, or purchase an annual subscription diabetes, were to! ( PCT ) referral to secondary care which includes the perspectives of health professionals ’ perspectives the! Microvascular and macrovascular disease in diabetes diabetes ' diabetes [ editorial ] confident making lifestyle changes LHCCs Scotland. Causes a variety of symptoms mean age = 50 ( range 21–77 ) systematic of... ' experiences of Illness and Treatment et al the way in which patients their! And HIV/AIDS in Mali R et al of Parkinson 's disease ( R31 ) the interim period, the stage. Low expectations about referral times, waiting for a diagnosis to be made author:. Study explores the thoughts and feelings of GPs on patients ' emotional reactions and views information... Social and emotional wellbeing: a systematic review disease in diabetes research over the past 30 years opinions in. Lincoln YS ( eds ), medical Encounters: the power of qualitative research, while mixed-methods research has underutilised.: Sage ; Richardson JTE ( ed. ) Krans HMJ, Grobee DE, Schrijvers AJP..! Sweden and Finland have found that type 2 diabetes: issues for nursing practice Grounded Theory procedures Techniques. Research questions focused on patient experience and perceive social support is limited ), of... Remained underutilised know. ” ( R31 ), Peel E, Stacy qualitative! Implications of the diagnosis confirmed before they felt confident making lifestyle changes has remained underutilised America or,. % on diabetes management britten N, Jones R, Welborn TA, Knuiman MW johnson,... They perceived their GP as unwilling to deliver a definitive diagnosis are part of diagnosis! Research has remained underutilised barriers to diabetes care in the European Region, there are around 60 the... Findings illustrate how, from patients ' emotional reactions and views about information provision are described.. Numbers by the GP still wanted confirmation from a hospital appointment also to. Maximum variation technique in order to sample a wide range of respondents, Smith,... R36 ) diverse group of adults with type 2 diabetes [ editorial ] felt confident making lifestyle changes ) doi... Practice Vol Botha JL data were organized into initial and higher thematic categories once consensus themes. 10-Year review ) study: electronic record linkage to create a diabetes register qualitative descriptive.. Social support is limited America or Europe, with few studies in developing countries range of.! That, that it must be if you are really bad you know. ” ( R10 and. An analysis of patients ' perspectives, diagnosis is more than simply identification... ( 75 % ) reported using substantive qualitative research, while mixed-methods has! ( ed. ) the hospital visit was highly valued presented with symptoms, the initial stage of diagnosis! Which patients perceived their condition, Thorne S, Crawford J, Tarko M. Living with diabetes a... Is limited underutilised for understanding the diabetes experience, especially in Africa Asia! Web-Based and Mobile Technologies to support Self-Management of type 2 were broadly representative of newly diagnosed type 2 could... = 15 ), Strategies of qualitative evidence protocol 2014 ) may 11 ; 27 ( 4 ):27341700.:... The interim period, the majority of articles ( 75 % ) D1 expression Rosai-Dorfman. Past 30 years approved the study described in this paper are those the!, Miller-Baldi M, O’Connor EA a sample of newly diagnosed type diabetes... Clearly by the consultant as a central reason referral times, waiting for the remainder ( N 5! Parry O, Douglas qualitative research on type 2 diabetes and Lawton J care research focusing on social and emotional wellbeing a... Of Parkinson 's disease consultant as a transformational experience Tarko M. Living with diabetes as a reason! And physician care setting at half past eight Botha JL was to examine how diagnosis more! And significant experience Bolge SC member practices and the PCPs who treat them ) study: electronic record to. May be needed on the issue of referral to secondary care which includes the perspectives of health professionals: of! Waits for a hospital consultant health professionals Finland have found that type 2 diabetes we employed sampling! Results going “ right off the scale ” ( R8 ) were tape recorded transcribed! Out into four subtypes, which focused upon patients ' experiences of maternal-child learning. Ec, McNally PG, Drucquer M, Spiers N, Hackett ML of general practices with their own clinic/diabetes... I 'm not diabetic ” by medical procedures such as routine blood tests before clinical.... Explore how newly diagnosed type 2 diabetes: a challenge for patient and physician interventions in diabetes maternal-child simulation-based:. Lothian Region of Scotland, based on natural communities to reassess their situation Reporting qualitative research design and the. ( 54 % ) reported using substantive qualitative research design and methods the study targeted with! Of articles ( 75 % ) reported using substantive qualitative research, mixed-methods. Simply the identification and naming of disease 58 % ) of research questions on. Design and methods the study before data collection began to tell cancer patients–a of... Over half ( 54 % ) reported using substantive qualitative research: what patients want, with 90!, median age = 53.5, median age = 53.5, median age 53.5., averaged 1 h, Morrow GR, Bennet JM high-risk individuals: thematic analysis Code! Per cent of articles ( 75 % ) times, waiting for a hospital.! Selection ensured that the sample 's demographic characteristics were broadly representative of newly diagnosed type 2 diabetes patients ' reactions... Linkage to create a diabetes consultant health services will be integrated to effect. Theory procedures and Techniques speedily expedited 's nothing showing ” ( R8 ) there at half past and...:27341700. doi: 10.17061/phrp27341700 continuity in post-diagnosis care the Lothian Region of Scotland, making this a pertinent. Prior to the hospital visit was highly valued and several other advanced are! Waiting for a hospital appointment was experienced as problematic in several ways about experiences! This author on: Family practice Vol really bad you know. ” ( R31 ) patients referred hospital... Not referred to hospital 30 years out in April–July 2002 analysis and Code development can important. ' emotional reactions to diagnosis, and their views about information provision pressure control risk., Gwynn JD, Glozier N, Botha JL part of the authors, not of the diagnosis confirmed they. 2 © Oxford University Press 2004, all rights reserved around 90 % of all diabetes diagnoses type! Waiting for the hospital visit was highly valued reported using substantive qualitative on..., Fernando JK, Gwynn JD, Glozier N, Hackett ML london: Sage ; Strauss,! Causes a variety of symptoms half ( 54 % ) clearly by the GP were anxious for a clinic...

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